3. 3 whole months. It may seem so short, but 3 months is a large enough victory that it has made this Monday so wonderful. I was so excited that I had a hard time falling asleep last night. I was thinking about what I wanted to share with you all in my blog today.
I thought about starting this blog early…maybe just jotting down some notes and ideas, but I’ve jinxed myself one too many times to celebrate a victory early. I had kind of gotten in a habit of basically not even talking about when I meet big milestones like 3 months because I didn’t want to jinx it. My mom and I would quietly acknowledge it and then just go on with our days, but isn’t that why there is a lack of awareness for epilepsy?? We aren’t talking about it enough. Is it awesome that I have epilepsy? Um, hell to the no. BUT, is it awesome that I’m 3 months seizure free? Um, hell yeah it is.
There is so much awareness for other illnesses and diseases. I’m not sure what we have to do to shine a light on epilepsy. 1 in 26 people, y’all. One-third of these people who suffer with seizures are uncontrolled. And I can tell you, from experience, it sucks! Legit, waking up on the floor of your work with firefighters and everyone surrounding you…not a good day at work, for sure. Or waking up on your bedroom floor, at home, alone, trying to find your phone so you can call your mom and ask her to come over and help you…worst feeling ever. These are just two of my real life experiences. And people with epilepsy experience them everyday.
I recently joined an online support group for people who suffer with epilepsy and, first of all, I wish I had done it years ago (I know my mom is shaking her head at this because she tried to get me to join support groups for years…but you know what they say, hindsight is 20/20?? Or maybe it’s just my stubborn nature?) Anyway, it’s been amazing to connect with people who have similar struggles and experiences to mine. But, it’s also very humbling because some of the people in this group are having multiple, uncontrolled seizures a day. Like, how is epilepsy research still so underfunded? I just don’t understand. Maybe it’s just closer to my heart, so I am more sensitive to it…perhaps.
So, last night I came to a solid conclusion: even though I still can’t drive myself to the veterinarian to get Buddy his heartworm medicine, and I have to take lots of anti-seizure medication everyday, I’ve basically decided that I am a survivor and I plan on living my best life, with or without seizures. So, bring it on life.